Administrator / Editor
My story begins twenty-two years ago as the proud owner of vitiligo universalis. Vitiligo started with a few spots, and along my journey I encountered many different obstacles and amusing situations. Fast forward twenty-two years, and here I am, almost 98% depigmented. I describe vitiligo as an erratic adventure of both acceptance and self-knowledge. As a Vitiligan the pursuit of happiness is a plan, which I chose to follow with my entire being. As many of you can attest, I had the daily ups and downs, slowly creating a path for myself, that few have been down before except for us. Vitiligo did not come to me with instructions. I had no understanding or empathy of this skin condition, because others at that time were not talking out loud about vitiligo. We claim that we're fine, but deep inside we see the truth within our hearts, which is both bewildered and perplexed.
In the beginning, I was often down emotionally, but gradually I began creating a parallel life for myself. Anticipating that one day my two lines of life would unite together somehow, i.e. (vitiligo life and normal life) and they did! Now I look back in both joy and harmony! I realized that I no longer have to hide the truth, so I began to reveal it. Eventually realizing that I'm the same as all other beings, so I began acting as one of them.
I must also give compliments to all those who integrated me into their lives, for I owe them my gratitude. Sometimes our loved one's pretend not to see our condition, but we all know they do. They should be commended for their efforts in convincing us that everything will be okay. For them, there is no real way to understand what's happening to us because they don't have vitiligo. In order to fully understand, you must first deal with it and then you can say that you know about vitiligo. My entire life was spent explaining to others what vitiligo is in order that they know better about this skin condition. Surprisingly, once I shared more from my personal experience, they did. This is why I am of the belief that we must share both our knowledge and personal experiences with the world, in order to become more public.
Regarding practitioners, I don't personally trust them. Some are attempting to understand this skin condition and find a cure, but most are simply looking to profit from our misfortunes. To me, vitiligo is an extension of myself, so I have learned over time to be happy with this. I cannot pretend to be something other than who I am right now. By far, the greatest miracle vitiligo has given me, is to teach me how to communicate to myself in the best way possible. Of course this hasn't solved all my problems, but it has given me strength to know myself better and as a result made it easier to walk with confidence. I sincerely hope that you find Vitiligans.com to be a happy place where anyone can share. You all, me and my best friend Robert Hinkle., project partner and co-founder (another strong vitiligan), we must make sure this will become a place to forget about invisible badness and think about the visible goodness that life has to offer!
"As a vitiligan I believe the truth is not that difficult to be found or seen, but it is very hard to accept it ! "